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Care.data - House of Commons Library
Commons library
This note provides information about the introduction of the NHS care.data system and the use of patients' data for research, and about how patients’ can opt out of having information from their medical records shared through this system. Documents to download. Care.data (299 KB , PDF) Download full report Download ‘Care.data’ report (299 KB , PDF) This briefing paper was written in ...
https://commonslibrary.parliament.uk/research-briefings/sn06781/
Care - researchbriefings.files.parliament.uk
pdf
Care.data is a system being introduced by NHS England and the Health and Social Care Information Centre (HSCIC) to extract and link large amounts of patient data collected as part of NHS care in order to improve the delivery of healthcare and to benefit researchers inside and outside the NHS. Concerns have been expressed in the media about the confidentiality of extracted data, about lack of ...
https://researchbriefings.files.parliament.uk/documents/SN06781/SN06781.pdf
Draft Health and Care Data Strategy - Tuesday 22 June 2021 ...
22-06-21 Hansard
These protections reflect the strict parameters for the use of data and security standards set out by the national data guardian for health and care. Today’s new strategy commits the NHS to going even further with a commitment to publish the first transparency statement setting out how health and care data has been used across the sector by 2022. Modern use of patient data saves lives and ...
https://hansard.parliament.uk/Commons/2021-06-22/debates/21062269000011/DraftHealthAndCareDataStrategy
Health and Social Care (National Data Guardian)
bills pdf
Health and adult social care data is defined in clause 2(6), and processing is defined in clause 2(7). An example of something that the Data Guardian could publish guidance about is security standards for storing health and adult social care data. 12. Subsection (3) imposes a duty on certain organisations and individuals to have regard to the National Data Guardian’s published guidance. The ...
https://publications.parliament.uk/pa/bills/cbill/2017-2019/0094/en/18094en.pdf
CARE.DATA AND PATHFINDER AREA LAUNCH - Early Day Motions ...
14-15 Session early day motion
That this House views with great concern plans by NHS England to relaunch the care.data initiative in trial regions in the run-up to the general election; recalls that the previous attempt to launch care.data was an unmitigated disaster that had to be abandoned due to widespread public opposition; believes that Parliament has been misled, as it received incorrect assurances that care.data ...
https://www.parliament.uk/edm/2014-15/870
Correspondence regarding Memorandum of Understanding (MoU ...
pdf
care data is used. Yet the publication of the MoU earlier this year came as a surprise to many. I do wonder whether this could have been reduced had there been more public debate before an agreement was made between NHS Digital, the Home Office and the Department of Health. This would have allowed more scrutiny of the rationale and factors contributing to the policy position which has been ...
https://www.parliament.uk/globalassets/documents/commons-committees/Health/Correspondence/2016-17/Correspondence-Memorandum-Understanding-NHS-Digital-Home-Office-Department-Health-data-sharing.pdf
Patient health records: Access, sharing and ...
Commons library
In 2013, a review was carried out by the National Data Guardian for Health and Care, Dame Fiona Caldicott, to ensure that there is an appropriate balance between the protection of patient information and the use and sharing of information to improve care. In 2016, a subsequent review by Dame Fiona Caldicott looked at data security and patient opt-outs for the use of their data. Recommendations ...
https://commonslibrary.parliament.uk/research-briefings/sn07103/
Final Negative Regulations Under Part 1 of the Care Act
deposited papers pdf
care and support, and a carer’s needs for support, by carrying out a needs assessment or a carer’s assessment. These Regulations make further provision about such assessments. The Regulations also apply to an assessment carried out under that Act in relation to the likely care and support needs of a child on becoming an adult (a child’s needs assessment), the likely support needs of a ...
http://data.parliament.uk/DepositedPapers/Files/DEP2014-1367/Final_Negative_Regulations_-_Under_Part_1_of_the_Care_Act.pdf
Health and Care Bill 2021-22 - House of Commons Library
Commons library
For social care, the Bill provides for the Care Quality Commission (CQC) to assess how local authorities deliver their adult social care functions and it aims to improve data sharing. There are also measures to streamline how people with ongoing care needs are discharged from hospitals. Public health measures in the Bill relate to food advertising and water fluoridation. Safety investigation ...
https://commonslibrary.parliament.uk/research-briefings/cbp-9232/
Queen’s Speech 2021: health and social care - House of ...
Giving the better care fund a standalone legal basis and enhancing assurance frameworks and data collection to improve accountability within the social care sector. Introducing further restrictions on junk food advertising; delegating powers to alter food labelling requirements; and moving responsibility for water fluoridation from local authorities to central government. Other measures such ...
https://lordslibrary.parliament.uk/queens-speech-2021-health-and-social-care/
Written evidence submitted by The Care Quality Commission ...
For example, through our State of Care report we analysed data on colorectal cancer pathways, 1 State of Care | Care Quality Commission (cqc.org.uk) which suggested that patients from black and minority ethnic backgrounds and from the most economically deprived backgrounds are at disproportionate risk from late diagnosis and are less likely than average to access the national screening ...
https://committees.parliament.uk/writtenevidence/38565/pdf/
Health and Social Care (National Data Guardian) Bill
bills pdf
adult social care data in England. (3) The following must have regard to such guidance— (a) a public body exercising functions th at relate to the health service, adult social care or adult carer support in England; (b) a person (other than a public body) providing— (i) services as part of the health service, (ii) adult social care, or (iii) adult carer support, pursuant to arrangements ...
https://publications.parliament.uk/pa/bills/cbill/2017-2019/0094/18094.pdf
Patient health records: access, sharing and confidentiality
pdf
Data Guardian for Health and Care, Dame Fiona Caldicott, to ensure that there is an appropriate balance between the protection of patient information and the use and sharing of information to improve care. In 2016, a subsequent review by Dame Fiona Caldicott looked at data security and patient opt-outs for the use of their data. Recommendations from this review led to a number of changes in ...
https://researchbriefings.files.parliament.uk/documents/SN07103/SN07103.pdf
Use of Patient Data - Thursday 24 June 2021 - Hansard - UK ...
24-06-21 Hansard
The failed care.data programme was the most notorious attempt to invade our privacy. Launched in 2013, NHS Digital’s project aimed to extract data from GP surgeries into a central database and sell the information to third parties for profit. NHS Digital claimed the data was going to be anonymised, not realising that that was actually impossible. The Cabinet Office described the disaster as ...
https://hansard.parliament.uk/Commons/2021-06-24/debates/2FA13B90-5377-4E73-A941-80F6A536B560/UseOfPatientData
Health and Social Care (National Data Guardian) Bill 2017 ...
Commons library
Download ‘Health and Social Care (National Data Guardian) Bill 2017-19’ report (678 KB , PDF) This House of Commons Library briefing provides information on key provisions in the Health and Social Care (National Data Guardian) Bill 2017-19. Peter Bone MP presented the Bill on 5 September 2017 as a Private Member’s Bill (Presentation Bill).
https://commonslibrary.parliament.uk/research-briefings/cbp-8327/
ETHNICITY AND HEALTH
pdf
data is only mandatory in secondary care. The Department of Health’s (DH) Quality of Outcome Framework recently introduced a small financial incentive to GP practices that have complete ethnicity data on their patient profiles. However, the patchy ethnicity data in primary care undermine the planning and evaluation of policy and precludes the monitoring of changes over time. The Commission ...
https://www.parliament.uk/globalassets/documents/post/postpn276.pdf
HEALTH AND SOCIAL CARE (NATIONAL DATA GUARDIAN) BILL
bills pdf
social care data in England. Health and adult social care data includes information relating to the health of both adults and children and to social care or carer support for adults. The Data Guardian may not publish guidance or give advice, assistance and information about the
https://publications.parliament.uk/pa/bills/cbill/2016-2017/0084/en/17084en.pdf
Waiting lists for elective surgical operations - House of ...
Commons library
The RTT data measures waiting times from referral to the start of consultant-led hospital treatment for non-urgent conditions. Just under 4.7 million patients were waiting for hospital treatment in England as at February 2021; the highest number since the referral to treatment data series started in 2007. While a relatively sharp decrease in numbers waiting was observed from April to June 2020 ...
https://commonslibrary.parliament.uk/research-briefings/cdp-2021-0058/
Health and Social Care (National Data Guardian) Act 2018 ...
Current version of Health and Social Care (National Data Guardian) Act 2018 with latest news, sponsors, and progress through Houses
https://bills.parliament.uk/bills/2145
Written statements - Written questions, answers and ...
The National Data Guardian Review also recommends that the Government consider the future of the care.data programme, as the consent and opt-out model proposed by the review goes further than the approach that was planned for care.data and its pathfinder areas. In light of Dame Fiona’s recommendations, NHS England has taken the decision to close the care.data programme. However, the ...
https://questions-statements.parliament.uk/written-statements/detail/2016-07-06/HCWS62
About 36100 results (page 1 of 1805)